Monday, March 07, 2005

SLO Doc visit

I go to see my SLO doctor this morning, just to say Here I am. He tells me I look pretty dang healthy. We go over all that has transpired. He does not like the Elspar reaction, and thinks we should look for an alternate. There is more vincristine and elspar coming in round 2, but the other drugs in round 2 are nothing compared to danarubicin and vincristine so I should have no problem sucking it all in. I ask if I will be able to shoot in the 70s at golf, he says sure, and I say Great, I never could before!
Realistically, golf is out until 2006 because of the PICC line and I already know that.

He thinks the sleepiness/fatigue and the gas bomb in my gut are from the Elspar and will dissipate in a few days. He is also surprised that they didn’t show Dana how to flush my PICC line; it’s really a shame because I know how much she was looking forward to doing that. When the doctor and I are done they send me down for some blood tests, just to check my numbers.

angel

This little old lady comes into the blood lab waiting area. She has a walker and her husband has a walker, she is about 4’10” and has long gray hair. She looks to me like a retired good witch. They call me into the blood lab, which is a 15’ square room with five stations for taking blood. They call in the little old gray-haired lady and she sits down at the station next to me. They start asking blood lab questions. They ask the old woman her birthday, and she says October 4 1922. She is 83. They ask, Have you been pregnant in the last 3 months? We all have a big laugh at that one.


The tech will not take blood thru the PICC line, they tell me they have to check me in through ER to do that, a RN has to do PICC draws, and I say forget it, just jab me the old fashioned way, which a blood lab tech can do. I thought the PICC line made things easy? Some bureaucratic madness?


Young John pointed out to me this am that I have lost all the hair on my right calf, and some on my left. Must be because I cross my right leg over the top when I sit on the couch. I am going to find the spot this afternoon for the tripod camera shot, and every day take some pictures of the changes in my body. This will be gross but scientifically or empirically interesting. I would think over time you could watch a time lapse of my hair falling out everywhere, and maybe my left arm shriveling and right arm growing, and stomach going in and out, and who knows what else. I don’t think I will post these photos, you can all breathe a sigh of relief. Maybe not until they show something interesting.

I volunteered to work at Hospice of SLO this morning; sent them an email and said here I sit with time on my hands. They are a volunteer group that offers bereavement counselling services to individuals and families. I must admit I have a little trepidation about volunteering for such service. I haven’t really had to deal with much grief or death, and in fact only recently remarked that (knock on wood etc.) I sure seemed lucky in not being dealt a lot of the tragedy that many seem to suffer. My dad died at 82, my Mom is fine, all my siblings are fine. They say if you look around the poker table and you can’t ID the sucker, you’re the sucker. Let’s hope the fact I have leukemia is the tragedy. Anyways, I have some fears about trying to help somebody that is dealing with death and dying, but I figure I need to pay this forward and hopefully not need it. Maybe I can learn a thing or two also.

Doctor just called and says I need some blood; my hemoglobins are back down to below 8, which is the expected result from the chemo. He schedules some blood for Wednesday, and I will have to lay low tomorrow.

Website of the day, this rocks, from Lisa S., thanks Lisa

http://www.monobrow.com/monobro/bro-48.shtml

I went into the garage at 6am to throw the load from the washer into the dryer, as today is laundry day. When you have kids you know that you have to check the pockets when you do laundry, or else you melt the chapstick on the wife’s nice new pants. I throw all the money and other stuff in a pile on the dryer. I happen to glance over at the miscellany pile and what do I see? Angels. Four angels. These were not here when I left 4 weeks ago. They must be a cosmic message. Hence, today’s Eyebrow Lowbrow. (Dana just ruined this for me and told me these are Cupids. Dang. Well Cupids are OK I guess.)


Johnangels





9 comments:

  1. John,
    First things first:
    HAPPY BIRTHDAY ! ! ! ! ! ! ! ! !
    I hope you have a great day on this benchmark occasion.
    Sounds like you'll get some great care from the SLO Doc.
    Once Dana gets good at irrigating the PICC line, it's a small step from there to managing the lawn sprinkler system, then on to flushing the rain gutters, then on to mowing the lawn, etc., etc. Very smart move John.
    HAPPY BIRTHDAY
    HAPPY BIRTHDAY
    HAPPY BIRTHDAY
    Mac

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  2. Eric quit cutting in front of me!
    John
    they are angels in little cupid disguises.
    on surfboards.
    on their way to the golf course.
    yeah, that's it, that's the ticket.

    I have every faith you'd do well at hospice work, and meet some wonderful people, angels and cupids in the process--but at the risk of pointing out the obvious, didja ever think you might already be paying it forward right here?
    think of all the connections from who knows where or when that without this would've had to be introduced at your wake--now,
    voila...I tune in to this tough story knowing it will be well told and usually find the biggest laugh of my day seeing what Mac says back,
    ~all thanks to you~
    so-it's your birthday?

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  3. Geez Pat,
    Yer puttin me onna spot here. I dont work well under pressure. Alwayz been one a dose guyz who jist sorta slides by on my blue-collar horse wit my pretty face, listenin ta good ole country music, eatin bar-b-q, goin a cat fishin, shootin possum, drinkin beer, watchin NASCAR an jist a stayin away from all things to Democratic (az in da party).
    Hell, frum wut John wuza talkin about, I wuzzin even shure wut he ment by hospice. I thought it wuz a typo. Ya see, down here in Roll Tide kuntree wen we wunna have sum fun, we take out sum steamin n spicey bar-b-q and uze dat ta chum da lokul wimen inta da bak a da Ford 150 pick-up truk. We call dat typa bar-b-q ho-spice. But wut heeza talkin about dont soun nuttin lyke are ho-spice. Hell, I mean we dont wunna waste our ho-spice on sik peepel.
    Y'all up north and out west alwayz bin a little bit of a puzzel ta me.
    Mac

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  4. HAPPY BIRTHDAY YOU FUZZY LUNATIC!!
    I know, I probably don't know you well enough to be so forward to call you a fuzzy lunatic. This is the unfortunate result of bareing your soul at the Blog Bar. As unhappy as I am about the reason for establishing this site, I sure enjoy drinking in the blogs. AND, I don't wake up with fuzzy teeth and a headache!

    Think carefully before you sign up for Hospice. I have two friends who have done Hospice counseling and nursing. My nurse friend said "it kind of sucks the life right out of you, no pun intended". She's looking for a different line of nursing.

    If you are really looking for something to occupy your time, you can be my personal shoe shopper anytime!! Size 8 1/2. No CFM heels though if you don't mind.

    Well, Happy Birthday and here's hoping you will be around for many, many more!!!
    xo, Lisa

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  5. Man, y'all have me checkin the dicitonary down here. So, it ain't the same as our ho-spice. Hmmmm.
    And John, I thought you were being rude to Pat when you said she had a karass. Had to look that one up too. I was thinkin, jeez, John's pretty hard on her. I figured you must have seen a picture of me recently and saw my karass (actually a truckass in Alabama), but that's okay. I just felt badly for Pat having her karass exposed to everyone on the blog. Glad I looked it up.
    Pat, glad you're part of the karass vs. having a karass.
    Sorry about the mixup.
    Mac

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  6. dear john, so far i like the angle eyebrows as i think they compliment your complextion. mac, your take on ho-spice leaves a better taste in my mouth, butt, this talk of her ass has me wondering if it is country or western music you like. pat's husband

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  7. The hospice thing does seem like it might be a downer, but then I was thinking of working the lighter side of dying, somehow. Didja ever play the PC game "Grim Fandango"? You were a calaveras, a soul that escorted people to heaven. The game had a great sense of humor, so that's what I was thinking, and it's clearly not well thought out, because most people don't want to visit the lighter side of dying. I may have to reconsider, maybe work the medium side of dying. No wait, Pat's Mom's friend - the small medium - has that covered. Niche hospicing is tough work!

    Lisa, I like the fuzzy lunatic thing, reminds me of the fuzzy logic thing that somehow works in getting elevators to you faster in Vegas. You have never seen me shop. New coat - 5 minutes. New shoes - 10 minutes. New car - 3 months. I admit I will 'model' shop CFMs at Farmer's Market for 2 hours, but that's a guy thing. I wore some CFMs at Mardi Gras this year, and almost broke my ankle. Do I dare post that pic?

    Maurice, Mac, Mac, Maurice, Maurice, great to hear from you. Wow,a little bit about Mac. Mac was born in PA, he's a rapper at heart, he looks like Alan Iverson, all tats and bling, with a big old crusty head of dangling chemo treatment skin under his do-rag. He was the inspiration for the 'Assman' Seinfeld. I can't say anymore.

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  8. Dear Mister Pat's Husband (Maurice, I presume):
    Please don't hurt me. She never said she was married and I certainly never intended to bring up anything in the world whatsoever of any kind of thing or even idea or thought or other kind of stuff or photos or anything else of any kind about her or anything . . . . . . . you know. It was all John's fault. Call me and I'll give you his address. If you feel you need to, you know, TALK with him, now's the time to do it because he's a little off his game at the moment, if you know what I mean. If you wait much longer, he'll be back to normal and that can be a very different game.
    I want to be your friend. I can send you a box of ho-spice.
    Mac

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  9. Oh John, PLEEEEEEZZZZZZ do publish the Mardi Gras picture. I'm not sure what I can send you in return, maybe an old pair of CFM shoes for your next Mardi Gras or, oh yeah, floss underwear!!! This should inspire Mac. I can't wait!
    xo, Lisa

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